NEWS
EXTRA
Human
Rights Act covers people with learning disabilities too, warns
report on religion and spirituality
Freedom of thought, conscience and religion is enshrined in the Human Rights
Act - yet the most basic religious and spiritual needs of many people with
learning disabilities are not being met, according to the Foundation for People
with Learning Disabilities.
In a report published this week: Why are we here? Meeting the spiritual
needs of people with learning disabilities, the Foundation says that policy
and management priorities omit the significance of spirituality from services
for people with learning disabilities. It also shows that faith communities
have the potential to offer support, friendship and inclusion, but many activities
and services exclude people with learning disabilities.
The report is aimed at faith communities, care providers, support staff, service
user groups, professional bodies, family carers, training providers and policymakers.
Why are we here? shows that many people with learning disabilities
have rich spiritual lives, and want people to take this seriously as a vital
dimension of the care and support they receive. It is a source of social
and psychological support, and a crucial aspect in the development of friendship,
connection, acceptance and self-worth.
The report draws particular attention to grief, loss and disconnection. Death
remains a taboo subject for many carers and support workers. The report identifies
a fear of 'doing damage', and an underlying assumption that the grieving needs
of people with learning disabilities are somehow different from those of the
rest of the population.
One example is the story of a middle-aged man named Graham, who took part in
the research. Graham's mother's death was never addressed directly with him.
Indeed on the day of his mother's funeral Graham's family decided that he shouldn't
be allowed to attend as it would be 'too upsetting'.
He stayed at home with a friend of the family he had never met. Graham's last
memory of his mother was peeking through the closed curtains and seeing the
family and the hearse move away from the front of the house.
Graham's support worker spent a lot of time with Graham explaining what had
happened and allowing him to spend time at his mother's grave. Only then was
Graham able to grieve properly.
- Why
are we here? is available from the Foundation for People
with Learning Disabilities, price: £17.50. Call 020
7802 0304 or visit www.learningdisabilities.org.uk
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